(Isaac says, "I love watching Buckeye Basketball!")
"It takes a village to raise a child"
I never quite realized the impact of that little saying until this year. And we have a village. Actually, we have quite a village of rockstars that is, helping us raise our little guys. Anytime we have a big appointment or surgery our family and friends step up and help us. They are sure that Gabe has a place to stay and they give him fun activities to keep him busy and keep his mind off mommy and daddy being away. We know he is well cared for and that gives us tremendous comfort. We have awesome doctors caring for Isaac. Not only are they ridiculously good at medicine, they also have Isaac's best interest in mind. They see his quirks and his talents. They are part of our rock star villagers and I am glad we found. Even if we have to drive 2 hours to get to them. And of course I MUST take note of all of the "behind the scenes" workers that are prayer warriors for our little Isaac and our whole family. I want you to know that all of your prayers, positive thoughts and loving energy vibes towards Isaac are truly having a positive impact on our little guy! He is a tough little man, but you warriors, well, you warriors are making him even stronger. His appointment last Friday was very long, but it went very well! We were really happy with what we heard. Here's a summary...
Isaac had another MRI which he was awake for this time. He did really quite well during it. He fussed a little being strapped down, but luckily it was quick. After this, we met with Isaac's neurosurgeon. He compared this MRI to his scan in January and we have great news. The scans looked the same! This means that his ventricles are stable! Isaac's ventricles are still large but they haven't gotten bigger! (What did I tell you, villagers?!) This does not mean he is completely in the clear for a shunt, but it does mean that right now he doesn't need one. We can continue to hope and pray that he won't need on in the future. We will go back in three months for another MRI to continue to monitor his head. We also got a prescription for his first wheelchair (the zipzac chair). This chair is so great and it will be so wonderful for Isaac to be able to get the hang of moving around by himself; something he is so ready to do. Check out the chair www.myzipzac.com
We also met with his colorectal doctor who was happy with his progress. There is not a lot of news on that front except for I think he is also the baby whisperer. After being woken up from his short and only nap of the day, Isaac was needless to say, pretty fussy. His doctor lifted him up and talked so sweet with him while Isaac played with his name badge. Isaac enjoyed "chatting" with his doctor.
And finally we met with the ortho doctor and urologist who are planning his next big surgery to place his bladder inside and do his pelvic oestomies. This is going to be a big and long surgery and will involve three surgeons so it is still in the works to find a date. His urologist would like him to be at least a year old and at least 20 pounds. It looks like it will be sometime this summer or the coming fall. We should hear back in a few weeks with a date. We are hoping it will be sooner than later.
Villagers, I just can't thank you enough. For the days that I am weary, I have comfort in knowing that all of our rock star villagers are silent warriors praying for Isaac. I am humbled by everyone's support. Rock stars, you are helping Isaac continue to rock on!
