Monday, June 3, 2019

Part 1: Sunday & Monday morning update

We have had a couple of quiet days of slow and steady progress here for Isaac.  He is tolerating the pain really well.  He does have some pain and is pretty reluctant to hit his pain medication button, so when he does ask for it, we know he really needs it.  I've overheard his nurse from the weekend telling the nurse coming on duty that he is a tough little guy and pushes through the pain.

Most of the time he watches TV and is in and out of sleep.  The meds make him sleepy, but each day he seems to be awake a little more.  Today, Isaac just wants me to be near him and rub his head.  I can tell he seems a little more uncomfortable today, but overall, he really is doing well.

Yesterday he said he wanted to make legos with mommy. So of course we jumped at the chance.  We made a new Star Wars Ty-fighter (I'm sure I didn't spell that right- I may not be well versed in my star wars battle ships!).  He did great and even made it 30 minutes past his pain med dose so he could finish it.  I told him to smile for a picture when he finished his lego, and he gave me his best smile for the moment.  I sure do miss his big smile, but I know he will have it back soon.




Right now, we are working on his tummy healing, his bowels and stomach to wake up, and keeping his pain controlled.  The NG tube in his nose is sucking out stomach juices, so once his stomach wakes and starts taking away those stomach juices, then we can try clamping the NG tube and seeing how he does with some liquids.  We pray that happens soon.

The hospital is huge and Dan and Micah took a walk exploring yesterday while we built legos.  There is so much history in this hospital and he shared some very pretty pictures with me of the original building.  I'm hoping once Isaac is able to get out of bed, I can take him on a walk around.  He may find some of it interesting since he loves history (then again- he may just like the playroom and change of scenery!)  I feel like I am in a city within a city in the hospital.

The kids have been stopping by daily with Grammie and Papa to visit Isaac.  It is so helpful to have them close by.  I miss them, but the fact that I can see them a little bit each day makes the world of difference and having Isaac see them is a highlight of his day.  Micah has been with me the whole time since Dan is still in town and Isaac always asks to rub Micah's head when he sees him.




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