Doesn't your heart just melt when you see this lovable, handsome little man! This is Trennor and he is the first and so far only friend that we have met with OEIS in person. Trennor and Isaac were both in the hospital at the same time. It was such a blessing to meet this blessing.
He is an adorable little guy with a smile on his face. His mom is an amazing mother, always right by his side, and his best advocate.
OEIS is a complicated complex and it does not present itself the same in every child. As you all know, Isaac's spinal defect is very severe and causes his biggest challenges. Trennor's challenges are in his intestines. This means that Trennor has had many surgeries, hospital stays, and tube feeding. He has not been able to take a bottle until a few weeks ago. Trennor has been such a trooper during the 1 1/2 years of his little life spending time in and out of the hospital and enduring many intense surgeries.
His mom, Megan has been his rock, right by his side. She has been his advocate, finding the best medical doctors and facility for Trennor, even if that meant being far away from her family and home for long periods of time. She has even started a group called Trennor's Heroes, a non-profit organization to help defray their medical costs and traveling costs related to Trennor's care. They also help raise awareness for colorectal disorders and plan to help other families with children with severe medical needs. How awesome is that?!
You can check out Trennor's Heroes on facebook at Trennor's Heroes. Tomorrow they are holding a fundraiser
"Trennor's Heroes needs you! We are serving brunch at the Ronald Mcdonald house in Danville PA next Sunday at 1130... Starting to cook and prep for it around 9-930am. We need some heroes for this local charity. The next months calander looks bare for meals for the families that stay there. While we are out having picnic's and going to Knoebels these families are praying that their children will survive! We are also planning to do dinner sometime later this month. Most likely June 22nd. If you can donate your time or money to help us pay it forward please contact me or Nici Hilbert Slater...Sunday's date is june 3rd 2012..So if you have nothing to do next week come out and help Trennor help others!" ~ from Megan's FB page
Please help this family by keeping Megan, Trennor and his dad, Rich in your prayers. Today I pray for Trennor, for complete healing on his body. For his intestines to work properly and for the blessing to eat anything he wants! I pray that Trennor's Heroes has a successful fundraiser tomorrow.
Jill, I can't tell you how much your blog helps all people understand the world of disability. You put a face with a condition and show the world that everyone is the same. They just put their pants on a little differently. You have traded your classroom and teaching only a few, to educating thousands. We are very proud of you! Love, Mom and Dad
ReplyDeleteHow inspiring that Megan, Rich, and Trennor are reaching out to help many families, despite all their own challenges.
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